“What’s the point?” We spend a lot of time talking about how genetic testing has the potential to save lives by giving us information that can be used to prevent cancer, lower risks, and diagnose it at earlier (and more treatable) stages. But people who have already been diagnosed with cancer may feel that

  While walking through Target the other day, we passed a 23andMe testing kit display. I made a comment about how the display was half empty to my husband, who replied “Classic. You go to Target to pick up some hand soap and cereal and you walk out with your entire genetic map!” I laughed

“The Convention of Wives is a captivating story about friendship, marriage and survival, but also opens our eyes to the impact of genetic disease and emerging treatments. A delightful and timely read!” — Karen A. Grinzaid, MS, CGC, Assistant Professor and Executive Director of JScreen at Emory University   About Debra Green Debra Green has

FOR IMMEDIATE RELEASE Contact:  Jason Edelstein 510-239-1102 JScreen Launches Jewish Genetic Screening Awareness Week Feb 3 – 7 The Week Will Highlight Powerful Stories, Timely Information, and Resources to Help Raise Awareness of the Importance of Genetic Screening Atlanta – A proclamation is being passed in the Georgia State Legislature for “Jewish Genetic Screening Awareness

JScreen is looking for paid student interns for the Summer and Fall 2019 semesters to help promote participation in the PEACH BRCA Study, a genetic testing initiative in the metro-Atlanta area. JScreen is: A national, public health program based out of Emory University dedicated to providing Jewish genetic disease screening. Until now, JScreen’s focus has

by Dena Winchester   Middle school is difficult for any and all children; it is a time of great change, confusion, and maturation. Sixth grade was especially torturous for me, as that was the year that I was diagnosed with lipodystrophy—a medical condition that essentially robbed me of all my fat cells, leaving me to

by Meira Katz Lyons “I screen. You screen. We all screen with JScreen!” That was the chant heard loud and clear as we marched down 5th Avenue with JScreen as part of the Israel Day Parade in Manhattan. Aswe took our first steps onto 5th Avenue, holding the large banner in support of JScreen and to celebrate

JScreen mourns the loss of our friend and fellow Jewish genetic disease activist, Randy Yudenfriend Glaser. Randy cofounded the Jewish Genetic Disease Consortium after giving birth to two children, Lauren and Jonathan, who are living with Mucolipidosis Type IV (ML4), a devastating and life-threatening Jewish genetic disease. Randy’s mission was to educate the community about

by Ilana W.    Wow is all I can say! After a whirlwind AIPAC policy conference with over 18,000 people from different backgrounds, cities, and ages, I am more invigorated than ever. I felt like I was in a microcosm of Jewish life; high schoolers interacting with Holocaust survivors, Rabbis and politicians conversing, and pretty

Research estimates that 1 in 17 people will experience the symptoms of a rare disease in their lifetime. Collectively, these individuals represent a large population, however, separately they are in desperate need of representation in research and healthcare. Rare Disease Day, on February 29th, helps to bring these issues to light, as the global community comes together to raise awareness